Presley had a rare, fast-growing stage four tumor called an Atypical Teratoid Rhabdoid Tumor. This tumor usually forms in areas of the brain that control breathing, heart rate, movement, and the muscles that control eating, talking and walking.
She needed to have surgery right away, but the impact this tumor would have on her brain was unknown.
Surgery was successful, but her cancer was still there
Presley underwent two surgeries within five days to remove the tumor. The second operation took out what was left of the tumor, but Presley's journey was just beginning.
This update from her mom was right after her surgery last Thursday, May 19th:
Thank you for for all your prayers today...
Research showed that this type of tumor usually grows back a year after chemotherapy, so the doctors decided to take a different route just two months after her treatment began.
Presley was scheduled to have her bone marrow harvested before her second round of chemotherapy in order to prepare for a transplant. Presley will be her own donor. Their plan was to take her bone marrow cells, treat them and then give them back to her.
However, on the day the harvest was scheduled, the doctors determined that she needed her cells to keep fighting. With the procedure on hold, her parents started to feel frustrated and concerned.
"When you think about her struggles and you want to cry out loud and say 'help me God, help Presley win this fight' you look over at her and she smiles at you as the tears run down your cheeks," one of her mothers said. "She continues to fight and fight even when the odds are against her, she doesn't know what 'give up' means and she never will."
Tonight I (Natalie) had the honor to visit our sweet Presley and today she turned 6 months old. Tonight I took photos of...
A few days later, the doctors harvested her bone marrow cells, but were about 2 million cells short of what they needed. They were worried a second harvest wouldn't be successful, but Presley pulled through and the operation was a success.
Presley had two successful bone marrow transplants and her last one is scheduled for April 25, 2017. If the tests come back clear, Presley will be in remission.
"She fights and she fights as I look into her eyes that have such passion, courage and strength I see the world in a new light," one of her mothers said. "Presley is a gift from up above and she is going to teach us and the world so much."
Presley wishes EVERYONE A VERY HAPPY NEW YEAR filled with Hope and Blessings!!!!! 🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉